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    Last Updated: 10/30/2025

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    MediFind found 21 doctor with experience in Clouston Syndrome near Los Angeles, CA. Of these, 19 are Experienced and 2 are Advanced.

    Location
    LocationClose
    21 providers found
      Advanced in Clouston Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Clouston Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Childrens Hospital Los Angeles Medical Group Inc

      4650 W Sunset Blvd, 
      Los Angeles, CA 
       (4.0 miles away)
      Languages Spoken:
      English

      Tena Rosser is a Pediatric Neurologist and a Pediatrics provider in Los Angeles, California. Dr. Rosser is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Memory Loss.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4650 W Sunset Blvd, Ms# 81, 
      Los Angeles, CA 
       (4.0 miles away)
      Languages Spoken:
      English

      Ashok Panigrahy is a Radiologist in Los Angeles, California. Dr. Panigrahy is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are CACH Syndrome, Hemolytic Disease of the Newborn, Aplasia Cutis Congenita, Clouston Syndrome, and Tissue Biopsy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Childrens Hospital Los Angeles Medical Group Inc

      4650 W Sunset Blvd, 
      Los Angeles, CA 
       (4.0 miles away)
      Languages Spoken:
      English

      Minnelly Luu is a Dermatologist in Los Angeles, California. Dr. Luu is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Pityriasis Alba, Hemangioendothelioma, Kaposiform Hemangioendothelioma, and Hemangioma.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4650 West Sunset Boulevard, 
      Los Angeles, CA 
       (4.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Meagan Hughes is a Pediatrics provider in Los Angeles, California. Dr. Hughes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Stork Bite, Vascular Birthmark, Congenital Athymia, and Clouston Syndrome. Dr. Hughes is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4733 W Sunset Blvd, 
      Los Angeles, CA 
       (4.2 miles away)
      Languages Spoken:
      English

      Valentina Sosa is a Dermatologist in Los Angeles, California. Dr. Sosa is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Acne, Vascular Birthmark, Focal Dermal Hypoplasia, and Familial Multiple Nevi Flammei.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Los Angeles Medical Center

      4867 W Sunset Blvd, 
      Los Angeles, CA 
       (4.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Cassarino is a Dermatologist in Los Angeles, California. Dr. Cassarino is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Epidermoid Cyst, Syringoma, Rosai-Dorfman Disease, and Intertrigo. Dr. Cassarino is currently accepting new patients.

      Experienced in Clouston Syndrome
      Pediatrics
      Experienced in Clouston Syndrome
      Pediatrics
      55 E California Blvd, Suite 200, 
      Pasadena, CA 
       (7.7 miles away)
      Languages Spoken:
      English

      Bo Kim is a Pediatrics provider in Pasadena, California. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Naegeli-Franceschetti-Jadassohn Syndrome, EEC Syndrome, and Zlotogora-Ogur Syndrome.

      Advanced in Clouston Syndrome
      Medical Genetics | Obstetrics and Gynecology | Neonatology
      Advanced in Clouston Syndrome
      Medical Genetics | Obstetrics and Gynecology | Neonatology

      The Regents Of The University Of California

      200 Medical Plz, Suite 430, 
      Los Angeles, CA 
       (11.7 miles away)
      Languages Spoken:
      English

      Deborah Krakow is a Medical Genetics specialist and an Obstetrics and Gynecologist in Los Angeles, California. Dr. Krakow is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Osteogenesis Imperfecta, Acromicric Dysplasia, Chondrodystrophy, and Spondyloepimetaphyseal Dysplasia Strudwick Type.

      Experienced in Clouston Syndrome
      Internal Medicine
      Experienced in Clouston Syndrome
      Internal Medicine

      Pih Health Physicians

      11500 Brookshire Ave, 
      Downey, CA 
       (10.5 miles away)
      Languages Spoken:
      English

      Richard Jordan is a primary care provider, practicing in Internal Medicine in Downey, California. Dr. Jordan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Osteomyelitis in Children, Type 2 Diabetes (T2D), Black Hairy Tongue, and Adams-Oliver Syndrome.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Descanso Dermatology Medical Group

      1346 Foothill Blvd, Suite 203, 
      La Canada, CA 
       (10.7 miles away)
      Languages Spoken:
      English

      Linda Wong is a Dermatologist in La Canada, California. Dr. Wong is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Clouston Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, and EEC Syndrome.

      Experienced in Clouston Syndrome
      Pediatrics
      Experienced in Clouston Syndrome
      Pediatrics
      10833 Le Conte Avenue, 12-441 Mdcc, 
      Los Angeles, CA 
       (11.5 miles away)
      Languages Spoken:
      English, Mandarin

      Joyce Wu is a Pediatrics provider in Los Angeles, California. Dr. Wu is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epilepsy in Children, Autism Spectrum Disorder, VLDLR-Associated Cerebellar Hypoplasia, and Lissencephaly 1.

      Experienced in Clouston Syndrome
      Neurology | Pediatrics
      Experienced in Clouston Syndrome
      Neurology | Pediatrics

      Uc Regents

      10833 Leconte Ave, 
      Los Angeles, CA 
       (11.5 miles away)
      Languages Spoken:
      English

      Joyce Matsumoto is a Neurologist and a Pediatrics provider in Los Angeles, California. Dr. Matsumoto is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Seizures, Epilepsy, Epilepsy in Children, West Syndrome, and Deep Brain Stimulation.

      Experienced in Clouston Syndrome
      General Practice
      Experienced in Clouston Syndrome
      General Practice
      757 Westwood Plaza, Pm&r, 
      Los Angeles, CA 
       (11.6 miles away)
      Languages Spoken:
      English

      Helena Drolshagen is a primary care provider, practicing in General Practice in Los Angeles, California. Dr. Drolshagen is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Focal Dermal Hypoplasia, Bullae, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      710 Westwood Plz, Department Of Neurology, 
      Los Angeles, CA 
       (11.6 miles away)
      Languages Spoken:
      English

      Aylin Reid is a Neurologist in Los Angeles, California. Dr. Reid is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Post-Traumatic Epilepsy, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Seizures.

      Experienced in Clouston Syndrome
      Pediatric Cardiology | Pediatrics
      Experienced in Clouston Syndrome
      Pediatric Cardiology | Pediatrics

      Uc Regents

      300 Medical Plaza, 
      Los Angeles, CA 
       (11.7 miles away)
      Languages Spoken:
      English

      Kevin Shannon is a Pediatric Cardiologist and a Pediatrics provider in Los Angeles, California. Dr. Shannon is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Cardiomyopathy, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      300 Medical Plaza, #b200, 
      Los Angeles, CA 
       (11.7 miles away)
      Languages Spoken:
      English

      Leif Havton is a Neurologist in Los Angeles, California. Dr. Havton is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Wallerian Degeneration, Yunis-Varon Syndrome, Spasticity, and Polymicrogyria.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      The Regents Of The University Of California

      150 Medical Plz, 
      Los Angeles, CA 
       (11.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Phioanh Nghiemphu is a Neurologist in Los Angeles, California. Dr. Nghiemphu is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Glioma, Glioblastoma, Astrocytoma, and Brain Tumor.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      200 Ucla Medical Plz Ste 450, 
      Los Angeles, CA 
       (11.7 miles away)
      Languages Spoken:
      English

      Amy Vandiver is a Dermatologist in Los Angeles, California. Dr. Vandiver is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Alopecia Areata, Autosomal Recessive Hypotrichosis, Aplasia Cutis Congenita, and Clouston Syndrome.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      The Regents Of The University Of California

      200 Medical Plaza, 
      Los Angeles, CA 
       (11.7 miles away)
      Languages Spoken:
      English

      Carol Cheng is a Dermatologist in Los Angeles, California. Dr. Cheng is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Acne, Cheilitis Glandularis, Comedones, and Intertrigo.

      Experienced in Clouston Syndrome
      Pediatrics | Cardiology | Pediatric Cardiology
      Experienced in Clouston Syndrome
      Pediatrics | Cardiology | Pediatric Cardiology
      757 Westwood Plaza, Box 951752, 3108 Rrumc, 
      Los Angeles, CA 
       (11.7 miles away)
      Languages Spoken:
      English

      Aneela Reddy is a Pediatrics specialist and a Cardiologist in Los Angeles, California. Dr. Reddy is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Coarctation of the Aorta, Anomalous Left Coronary Artery from the Pulmonary Artery, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Showing 1-20 of 21

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Los Angeles, CA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Los Angeles, CA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Los Angeles, CA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Los Angeles, CA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Los Angeles, CA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Los Angeles, CA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Los Angeles, CA?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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